Caring for a loved one with mesothelioma is rewarding, but it can also be challenging. You do not only have to provide emotional support and comfort. You must also assist with daily activities and manage medical appointments. If a loved one was recently diagnosed with mesothelioma, here are five tips to help you support them throughout the journey.
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Learn about the disease and treatment options
The first thing to do when your family member receives a mesothelioma diagnosis is to familiarize yourself with everything about the condition. Educate yourself about the disease and available treatment options to make informed decisions. The following are the different types of mesothelioma:
- Malignant pleural mesothelioma, which affects the lining of the lungs.
- Pericardial mesothelioma, which affects the lining of the heart
- Peritoneal mesothelioma, which occurs in the lining of the abdomen
- Testicular mesothelioma, which occurs in the lining of the testes
The standard treatment options for mesothelioma include surgery, chemotherapy, radiation, and immunotherapy, depending on the cancer type and stage of the disease.
Stay in close contact with your family member’s medical team to ensure you are up to date with their treatment plan and prognosis.
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Manage pain and symptoms effectively
Mesothelioma often causes severe pain, fatigue, and breathing difficulties. Be sure to help your loved one manage these symptoms for their comfort. Below are some adjustments you could make at home to improve comfort:
- Ensure proper ventilation: Keep the home well-ventilated to improve air quality and make breathing easier. Consider using an air purifier to reduce irritants.
- Adjust sleeping positions: Provide extra pillows or an adjustable bed to help with breathing difficulties and reduce discomfort.
- Encourage gentle movement: Light stretching or short walks (if possible) can help prevent stiffness and improve circulation. Always follow the doctor’s recommendations.
- Provide comfortable clothing and bedding: Loose, breathable clothing and soft bedding can minimize irritation and help your loved one feel more at ease.
- Partner with a healthcare provider: Talk to your loved one’s doctor to determine appropriate pain relief medications and palliative care options.
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Provide emotional support
It can be emotionally overwhelming for your loved one to receive a mesothelioma diagnosis, and they may experience fear, anxiety, depression, and frustration. Offer emotional support by actively listening, reassuring them, and creating a positive and calm environment.
You could also encourage them to join mesothelioma support groups or to speak to a counselor to help them cope with their feelings.
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Assist with daily activities and nutrition
As the disease progresses, your loved one may need help with daily tasks such as cooking, dressing, and mobility. Be sure to assist with these activities while respecting their independence. Consider speaking to a dietitian to ensure they have a balanced diet that includes high-protein and easy-to-digest foods. If your loved one experiences difficulties swallowing, invest in soft foods and liquid meals to provide adequate nutrition.
Endnote
Caring for your loved one with mesothelioma is demanding. However, you can improve your family member’s quality of life with the right approach. Be sure to stay informed, manage pain and symptoms, offer emotional support, and assist with daily needs to provide the best possible care.